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Links
Ten years ago when I searched the web for the first time, I only found one article on FVL and thrombophilia- actually it was difficult to find anything on thrombophilia. Now if you search, you'll find many articles. This list is not exhaustive or comprehensive. It is a sampling of what's out there. If you want to read up on APC, APS, FVL or any other clotting disorder go to one of the major search engines and put in a variety of spellings for the disorder. You will find many articles.
Please also be sure to look at our Education Section, which contains locally-hosted documents regarding FVL and Thrombophilia.
Links for FVL:
Venous Thrombosis and the Factor V (Leiden) Mutation
Pregnancy, Clotting, and Factor V Leiden:
An Overview
A profile of Factor V Leiden
Information on the genetic Factor V Leiden test
Venous Trombosis and the Factor V Leiden Mutation
1995 Transfusion medicine update
Annals of Internal Medicine-Factor V Leiden Mutation
and the Risks for Thromboemibolic disease:A clinical Perspective
Yahoo group-Factor V Leiden and Pregnancy(only) information
Factor V Leiden Mutation Analysis
Kimball genetics FVL and other clotting tests information
Home INR Testing Machines:
Hemosense
The Protime® Microcoagulation System
Roche® Coaguchek
FVleiden.org recently diagnosed section on home INR testing machines
APC and Protein S Deficiency Articles:
Protein S Deficiency and Thrombophilia in the UK Protein
S info from Mass. General Hospital
Resistance to activated protein C due to Factor V R506Q (Factor
V Leiden)
Protein S Deficiency and Thrombophilia web page from the UK
EMedicine Protein S Deficiency
FVL:Activated Protein C Resistance
Information on the activated protein C resistance test
Resistance to activated protein C due to Factor V Leiden
APS Information:
Antiphospholipid Antibody Syndrome Information page- APS Foundation of America
MedicineNet.com
APLS.TK
MTHFR:
Pregnancy info.net - MTHFR
Homocysteine and MTHFR Mutations
Hyperhomocysteinemia
Children's Information:
Cardinal Glennon Children's Hospital's excellent children's book -for children-A story
describing what FVL and a clotting
Centers that treat children with thrombophilia
NIH locator for pediatric clotting doctors
Children's Blood Foundation
Pediatric Stroke Network
Project Red Flag Scholarship info from NHF
Medline plus Antithrombin III information
EMedicine -Antithrombin Deficiency
Antithrombin III Deficiency Information
ATIII.com
Clinical Trials:
NIH Clinical Trials Page
Clinical Trials at Novartis
Center Watch Clinical Trials
Foundations or companies specializing in clotting:
ClotCare - online Resource
Venus handbook -all clotting disorders explained
AirHealth.org - How to avoid getting a DVT while traveling
Picture and explanation of blood clotting from RNcenus.com
Blood clotting information
Lovenox Information
Medline Plus Drug Information
NORD
International Society of Thrombosis and Haemostasis(ISTH)
American College of Cardiology
American Heart Association
Preeclampsia Foundation
Stanford OAC Information
Coumadin® Information:
mybloodthinner.org
Coumadin® information from CardioDoc.net
Coumadin® Home Page
INR@Home
PTINR.com
Information
on coumadin® side effects from two members of our email forum
General links regarding clotting and/or thrombosis information:
The Thrombosis Interest Group of Canada
List of CDC founded thrombophila Centers (also listed in the ask the
doc section)
Thrombophilia and New Anticoagulant Drugs
Heparin-induced thrombocytopenia (HIT)
Office of Rare Diseases
Thrombosis Online
Yahoo Thrombosis Group
What is a genetic and acquired thrombophilia
Diseasesconditions.com
DVT Information:
SHM-Society of Hospital Medicine-Venous Thromboembolism
Vascular Disease Foundation
DVT information from England
Deep Vein Thrombosis and Thrombophlebitis information page
Company Information:
ARIXTRA is an innovative and effective alternative anticoagulant.
Vitamin K:
A vitamin K resource
Vitamin K and Diet from the government
Vitamin K Content of Common Food
Nattokinase Information:
Link to Natto information
Ventrep Sante, Inc. -Tokyo Japan info on Natto
Thrombophilia Fundraising:
Donate to TAP
Donate to APS
Links were last updated on 6/13/2009